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Predicting Caregiver and Family Quality of Life in Families With Children With Autism Spectrum Disorder

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Abstract

Purpose

The purpose of this study is to explore caregiver and family quality of life in families with children with autism spectrum disorder (ASD). To better understand the experience of caregivers and families of children with ASD, a family systems perspective using constructs from a psychosocial adjustment model of disability (i.e., role impact as the independent variable and relationship satisfaction and mastery as mediator variables) was studied to explain caregiver and family quality of life.

Method

Hayes’ PROCESS macro was used to determine the variance of caregiver and family quality of life accounted for by the predictor variables.

Results

The results indicated that the models explained 52.3% of the variance in caregiver quality of life and 44.4% of the variance in family quality of life.

Conclusions

The findings of this study expand the current literature on caregivers of children with ASD, and the important variables to consider related to caregiver quality of life and family quality of life. Implications for rehabilitation research (e.g., increased need for a focus on family variables across research agendas) and practice (e.g., increase need for family-oriented interventions) are discussed.

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