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Abstract
Purpose
As the disability community holds a larger presence in the United States, the needs become more apparent. Researchers in collaboration with the Christopher & Dana Reeve Foundation looked to find the most pressing needs of the paralysis community—inclusive of persons with paralysis, family members/caregivers of persons with paralysis, and professionals working with persons with paralysis.
Methods
As part of an online needs assessment survey, respondents were asked to identify which topics were most important to them from 25 issues. Data was received and analyzed from 237 valid and unique responses.
Results
The top ranked issue for each group were as follows: (a) Persons with Paralysis—Public Accessibility, Inclusion, and Universal Design; (b) Family Members/Caregivers—Prevention of Secondary Conditions; and (c) Professionals—Rehabilitation.
Conclusions
It is essential to consider the priority areas from the U.S. paralysis community when embarking on new policy initiatives and when advocating for changes to existing policy.
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