This book provides a state-of-the-art overview of the principles of cancer care and best practices for restoring function and quality of life to cancer survivors. Cancer rehabilitation interventions including physical, occupational, or speech therapy; exercise training; psychosocial and cognitive interventions; and physician-directed diagnostic imaging, injections, and pharmacologic symptom management have the potential to treat many impairments from cancer treatment, thereby improving functioning and quality of life. Multimodal rehabilitation interventions have also been shown to improve return to work compared to usual care. The chapters of the book review the latest evidence about which interventions should be used to treat specific impairments thereby constituting the most comprehensive and up-to-date reference on this topic. The book is organized into nine parts comprising 90 chapters. Part one presents history of cancer rehabilitation, cancer statistics, and principles of cancer care. Part two discusses various cancer types, which includes breast cancer, gastrointestinal malignancies, head and neck cancer, pediatric cancers, and primary bone tumors and their assessment and management. Parts three through six describe cancer pain, medical complications, neurological and neuromuscular complications, and musculoskeletal complications of cancer such as radiculopathy, plexopathy, autonomic dysfunction, and bone metastases and their management. Part seven discusses general topics related to cancer rehabilitation, which includes physical and occupational therapy, therapeutic modalities in cancer, therapeutic exercise in cancer, nutritional care of the cancer patient, sexuality issues, and distress and other psychiatric considerations in cancer rehabilitation. Part eight thoroughly explores the identification, evaluation, and treatment of specific impairments and disabilities that result from cancer and the treatment of cancer such as balance and gait dysfunction, cancer related fatigue, radiation fibrosis syndrome, and bowel dysfunction. Part nine discusses functional measurement in patients with cancer, health maintenance and screening in cancer survivors, research issues, barriers to accessing cancer rehabilitation, and building a cancer rehabilitation program.
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Palliative care is considered a subspecialty of medicine and nursing, with certifications offered to insure the highest quality of care that can be offered to those with acute, chronic, progressive, life-altering, or life-threatening diseases. Palliative and hospice care are on the same continuum. Hospice care is offered in the last 6 months of life, whereas palliative care is offered earlier, at the time of diagnosis, with any diagnosis that can eventually lead to death. This book gives palliative care and hospice nurses the advanced knowledge they need, beyond their undergraduate and graduate nursing education, to incorporate advanced empirical, aesthetic, ethical, and personal knowledge into their nursing practice. The book is organized into four sections comprising 27 chapters. Section I articulates the purpose and value of palliative care and hospice nursing and the revolution across America and the world, which demands the relief of suffering and every effort to promote quality of life until its end. Section II emphasizes on the care for the whole person and family. The chapters on culture and spirituality, and sexuality will help to recognize that a person is more than a physical body. The art of communication, the promotion of health, and holistic therapies are also taught. Section III focuses on advancing one’s knowledge of life-threatening diseases such as cancer, end-stage heart disease, end-stage heart disease, end-stage renal disease, end-stage liver disease, chronic lung disease, neurological disorders, HIV/AIDS. Section IV deals with effective management of symptoms such as dyspnea, anxiety, depression, delirium, posttraumatic stress disorders, gastrointestinal symptoms, fatigue, and skin alterations by pharmacologic, nonpharmacologic, and complementary therapies. In the peri-death chapter, nurses will learn how their presence at the deathbed can imprint a memory that replaces fear with calm, suffering with relief, and sorrow with abundant appreciation and love.
One of the historical pillars of rehabilitation counseling has been the use of assessment throughout the rehabilitation process. With this historical emphasis, it is not surprising that the focus on assessment and the methods and techniques used have changed and evolved. As a result, students, practitioners, and researchers are on a constant quest for updated and current information to guide and inform practice, policy, and research. This constant quest for updated and comprehensive information is directly relevant to the assessment of individuals typically served by rehabilitation and mental health practitioners and is the focus of this book. To date, there has not been a book that has been able to provide a comprehensive discussion of topics applicable to service delivery across both setting. This book attempts to fill this gap. One factor that guided the development of this book was the authors’ goal to provide both the foundational information necessary to understand and plan the assessment process and combine this material with information that is applicable to specific population and service delivery settings. To achieve this goal, each of the chapters is written by leaders in the field who have specialized knowledge regarding the chapter content. The chapters provide practical hands on information that allows for easy incorporation of the material to rehabilitation and mental health practice. To further strengthen practical application, case studies and templates have been incorporated where applicable to highlight specific key aspects to promote application to service delivery. Second, this is the first assessment book to be developed after the Council on Rehabilitation Counselor Education and Council on the Accreditation of Counseling and Related Programs merger. Finally, the authors hope that the readers of this book can apply this information to enhance the overall quality of life of the individuals they work with, especially individuals with disabilities.
Clinical trials are the engine of progress in the development of new drugs, procedures, and devices for the detection, monitoring, prevention, and treatment of cancer. A well-conceived, carefully designed, and efficiently conducted clinical trial can produce results that change clinical practice, deliver new oncology drugs, interventions, and diagnostics to the marketplace, and expand our understanding of cancer biology. This book presents the latest designs and methods of conducting and analyzing cancer clinical trials in the era of precision medicine with biologic agents including trials investigating the safety and efficacy of targeted therapies, immunotherapies, and combination therapies as well as novel radiation therapy modalities. It provides examples of real-life flaws and real-world examples for how to successfully design, conduct and analyze quality clinical trials and interpret them. With chapters written by oncologists, researchers, biostatisticians, clinical research administrators, and industry and FDA representatives. The book provides a comprehensive guide in the design, conduct, monitoring, analysis, and reporting of clinical trials in oncology. It covers various topics such as immunotherapy trials, radiation therapy trials, multi-arm trials, meta-analysis and adaptive design, use of genomics, dose modifications and use of ancillary treatments in investigational studies, establishing surrogate endpoints, practical issues with correlative studies, cost-effectiveness analysis and more. The book is organized into six parts containing 49 chapters. The first part provides background and introduction to oncology clinical trials which includes ethical principles guiding clinical research. The next two parts discusses designing and conducting oncology clinical trials such as phase I, II and III trials; confirmatory clinical trials, noninferiority trials, and quality of life studies. The fourth part describes analyzing results of oncology clinical trials. The fifth part talks about special considerations in oncology clinical trials. The final part discusses about cooperative groups, regulatory, and governing bodies involved in oncology clinical trials.
Compassion fatigue and burnout are the two most frequently talked about aspects of professional quality of life. This book shares stories of human connection and the intimacy of the caring experience. Part one discusses the integral relationship between the cared for and the carers, with an emphasis on an ethic of care. Part two discusses the positive aspects of nurses’ professional quality of life, focusing on compassion contentment and its relationship to their ethical foundation—the values and excellences identified and solidified in their code of ethics. It introduces a healing model (
ART) specifically designed to address the enhancement of professional quality of life. It addresses different aspects of professional quality of life (compassion fatigue, moral distress, burnout, workplace violence, facing death, posttraumatic stress disorder, leadership) and describes how ARTcan be applied. Part three covers the bad—both compassion fatigue and moral distress. Part four delineates the ugly, uglier, and ugliest aspects of professional quality of life. It includes discussion of incivility and bullying which are definitely the uglier side of nursing. Part five discusses how facing death can negatively affect nurses and, conversely, how it can positively transform the way they go about being in the world and how they go about caring for the dying and their loved ones. It includes a discussion on collective trauma and death overload, from both natural and man-made disasters, along with posttraumatic stress. Part six discusses the collective healing of nursing profession through nursing education and leadership efforts and how, through knowing participation, nurses can work toward transforming the workplace and enhancing their professional quality of life.
This book deals with a number of issues and strategies for counseling people with disabilities. It allows counselors and other related health professionals to learn from the writings of 16 people with disabilities across North America. The book provides information on how other professional disciplines perceive and are trained to view disability. It discusses the medical and psychosocial aspects of caregiving in the country and highlights some of the most difficult decisions individuals and families may have to make in this process. The book is organized into four parts containing sixteen chapters. Part I explores disability from a sociological perspective. The topics covered are: the history of how people with disabilities have been viewed and treated in society; attitude formation, societal attitudes, and myths about disabilities; culturally different issues and attitudes toward disability; and attitudes toward disability by specific special interest and occupational groups. Part II focuses on the psychology of disability surrounding the individual and his or her family. The topics address: theories of adjustment to disability by the individual; family adaptation across cultures toward a loved one who is disabled; sexuality and disability; and the psychosocial world of the injured worker. Part III addresses pertinent topics concerning psychosocial issues of disability. The topics include: disability and quality of life over the life span; implications of social support and caregiving of loved ones with a disability; and thriving versus succumbing to disability: psychosocial factors and positive psychology. Part IV addresses counseling strategies and insights for working with persons with disabilities. The topics discuss: which counseling theories and techniques work best with different disability populations and why; social justice, oppression, and disability; counseling families in the community; ethical responsibilities in working with persons with disabilities and our duty to educate; and basic dos and don’ts in counseling persons with disabilities.
Long-term care (LTC) involves a continuum of care required to meet the differential needs of older adults. This book provides multifaceted insights to address the ever-changing world of the LTC industry, and contains effective practices and quality programs in eldercare. It provides the necessary tools and tips to maximize the quality of care and quality of life for older adults living in LTC communities. The book covers the most crucial aspects of management, including federal and/or state regulations overseeing the operation of LTC facilities. It offers advice on care at home, naturally occurring retirement communities, and continuing-care retirement communities; client care, staff retention, preventing elder abuse and neglect, and anticipating and managing litigation and arbitration in LTC; aging and human diversity, Alzheimer’s disease, palliative care, and care transitions; and much more. This book consists of 3 parts and 18 chapters. Each chapter includes helpful pedagogical features such as learning objectives, an introduction, case studies, effective practices, and/or model programs in eldercare that are useful in the administration of LTC communities, as well as a chapter summary and references. Figures and/or tables are used when warranted. The book will serve as a helpful reference for professionals who are associated with Leading Age California, the American College of Healthcare Administrators, the American Society of Aging, the Association for Gerontology in Higher Education, the Gerontological Society of America, and other aging and LTC administration organizations.
Today, owing to advances in biochemistry and next generation sequencing, we know more about the specific causes of early life epilepsies associated with encephalopathy than ever before. This book is a highly practical but sophisticated guide to the care of children with pediatric epilepsy. The first two sections of the book deal with the basic mechanisms including pathophysiology of seizures and epidemiology, etiology and diagnosis of pediatric epilepsy. Section III of this book on age-related syndromes, groups the epilepsies in a novel way; looking at epilepsies from the perspective of an electroencephalographer. There are the familial epilepsies with focal seizures, the genetic generalized epilepsies, the self-limited epilepsies, the epilepsies with encephalopathy, and the epilepsies related to focal structural lesions. The book includes a discussion of those issues of particular relevance to the female patient beyond just teratogenesis, including polycystic ovary syndrome and catamenial epilepsy. Several antieplieptic drugs such as Barbiturate, Primidone and Benzodiazepine, and the ketogenic diet and alternative and anti-inflammatory therapies are covered in the Section V of the book. The penultimate section discusses epilepsy surgery and neurostimulation. The book ends with an expanded discussion of the epilepsy spectrum, illustrating that epilepsy is more than just a susceptibility to seizures by focusing on quality of life, psychiatric comorbodities of childhood epilepsy, and behavioral and cognitive side-effects of anti-epileptic drugs.
This book provides a comprehensive and concise visual reference on acute myeloid leukemia (AML) and acute lymphoblastic leukemia (ALL) seen in children and adults. It addresses all aspects of AML and ALL including their risk factors, cytogenetics and mutational characteristics, diagnoses, clinical management and prognoses which are imperative and challenging for medical students, residents, hematology and medical oncology fellows, and even community oncologists and hematologists. The book focuses on issues surrounding the epidemiology, diagnosis, treatment, and overall management in both pediatric and elderly patients; psychosexual issues that arise as a consequence of both the disease and treatment; and the complex field involving the development, approval and regulatory aspects of new treatment strategies. It stimulates readers to develop new and refreshing concepts that, in turn, could lead to cures and enhanced quality of life for children and adults suffering from acute leukemias. The book contains over 40 tables and over 220 illustrations, histologic photomicrographs, flow diagrams, graphs, and schemata with detailed figure legends. The result is a visually engaging book that is easy to read, review, and remember. The book also provides helpful and evidence-based treatment recommendations when providing induction therapy, consolidation therapy, and bone marrow transplantation.