The skills of working with the psychosocial aspects of grief, death, dying, and loss are essential, particularly in working with persons who have acquired chronic illness and disability. This chapter helps elucidate important psychosocial issues in death and dying as it relates to how individuals experience and express grief within the context of the person’s physical, psychological, cognitive, emotional, social, cultural, and spiritual well-being. Recognition in the new Diagnostic and Statistical Manual of Mental Disorders (DSM- 5) of the Persistent Complex Bereavement Disorder diagnostic category provides legitimacy for the individual’s sense of loss and mourning based on multiple events related to death and dying. It is essential that counselors address such psychosocial concerns clients because of the added therapeutic value and ethical obligation to guide the individual and his or her family in important decisions regarding death and dying.
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The International Classification of Functioning, Disability and Health (ICF; World Health Organization [WHO], 2001), and its predecessors the International Classification of Impairments, Disabilities and Handicaps (ICIDH and ICIDH - 2; WHO, 1980, 1999) have been influential in the conceptualization of the construct of disability in the United States and internationally for more than three decades. This chapter begins with a brief overview of the history of classification of health and illness, and the role that different conceptualizations of disability have played along the way. It then reviews the development of the ICF within the context of these conceptualizations and introduces its key concepts, conceptual framework, and a brief orientation to its use. It concludes with consideration of the current and future impact of the ICF on conceptualizing psychological and social aspects of illness and disability.
The chapter explores the history from the middle ages to the present day, noting the trials and tribulations of a population that continues to remain poorly understood and misperceived by the general public. Conditions for people with psychiatric disabilities did not fare much better in the American colonies. Similar to the circumstances during the Middle Ages, care for this population was the family’s responsibility if they had a family to care for them. Moral treatments began to decline in the second half of the 19th century in favor of somatic therapies and behavioral control techniques. Although psychiatrists initially scoffed at the notion that the quality of the care they provided in mental hospitals was subpar, research was conducted in the treatment of mental illness that brought about improvements. Physicians continued to develop and work toward improvement of somatic treatments for psychiatric disabilities in the early part of the 20th century.
Identity arises out of the sum of our experiences. This chapter traces the developmental concept of identity through its manifestations at different levels of community, revealing a complex and systemic context for rehabilitation counseling. Each level of identity (personal, social, and collective) denotes a potential point of counseling exchange with the family. The authors of this chapter consider family identity in relation to disability and interaction with the community. They discuss personal identity versus family identity and social identity within a social movement. The McMaster model of family functioning and the three dominant tasks of family are explored as are the International Classification of Functioning, Disability and Health (ICF; World Health Organization, 2001) domains of health conditions, activities and participation, and functions affected. Finally, the chapter presents methods of family coping (both negative and positive strategies), family resiliency, and strategies that counselors can use to effectively assist families.
- Go to chapter: Giving Parents a Voice: A Qualitative Study of the Challenges Experienced by Parents of Children With Disabilities
Giving Parents a Voice: A Qualitative Study of the Challenges Experienced by Parents of Children With Disabilities
No other single individual or health care provider has more influence on the personal health and wellness of a child with a disability than the parent. To date, however, much research concerned with the well-being of parents of children with disabilities has not captured their experiences from the perspective of the parents themselves. Qualitative methods permit researchers to study selected issues in depth, and they produce a wealth of detailed information that increases understanding of the cases and situations studied. This chapter identifies specific sources of challenges related to raising a child with a disability as expressed by parents themselves. Specifically, it investigates the following research questions: (a) What are the principal stressors and challenges for parents of children with disabilities? and (b) What supports and services do parents identify as being needed to deal with the stress and challenges of their responsibilities?.
The U.S. Citizenship and Immigration Services (USCIS; 2016c) under the U.S. Department of Homeland Security delineates the complex law and path to citizenship as it relates to immigrants, refugees, and asylum seekers. The etiology of the worldwide epidemic of immigrants, refugees, and asylum seekers is clear. It is war that is at the foundation of all human suffering as millions are forced to relocate geographically. This epidemic of person-made disaster points to the overall lack of respect and empathy for human life perpetrated by brutal governments, religious zealots, and other indigenous tribal warring groups. Disaster mental health responders who commit to work with specific indigenous populations of global cultures require a much different approach to provide culturally sensitive interventions and strategies. This chapter offers some guidelines to mental health professionals to begin working globally with the new culture of immigrants, refugees, and asylum seekers.
There is power in revisiting the underlying foundational principles of our past and looking at how they can inform our present and future functioning. This chapter looks back at the historic foundational principles of rehabilitation psychology (RP) and shows the links to current research on the psychology of well-being and explores implications for providing meaningful interventions that could improve the lives of persons with disability and chronic illness. It reviews how positive psychology (PP) approaches have been used for people with disabilities (PWD), presents an overview of the development and structure of well-being therapy (WBT), including a literature review, and then demonstrates how it could be applied to people with spinal cord injury (SCI). The chapter concludes with a discussion of the broader implications for utilizing these approaches more widely in RP as well as a cautionary note.