This chapter provides the reader with an overview of (a) the dynamics (i.e., process) of psychosocial adaptation to chronic illness and disabilities (CID), (b) methods commonly used to assess psychosocial adaptation to CID, and (c) intervention strategies applied to people with CID. The chapter groups the psychosocial adaptation to CID under three headings: basic concepts such as stress, loss and grief, and quality of life, CID-triggered reactions, and CID-related coping strategies. The literature on CID-related coping strategies is vast. The chapter describes only a cursory overview of the most commonly reported strategies, directly related to coping with CID. It first briefly discusses the concept of coping and illustrates its relevance to CID. Over the past half century, a large number of measures of psychosocial adaptation to and coping with CID have been reported in the literature. The chapter reviews only those psychometrically sound measures most frequently reported in the literature.
Your search for all content returned 4 results
Many disabled people who have internalized dominant, ableist, heteronormative notions of strength, beauty, sex, and sexuality continue to experience psychological insecurity and distress when confronted with their own sexuality. The institutionalization of disability studies and the proliferation of a vibrant and dynamic disability culture, both of which have their roots in disabled activism and the social model of disability, have given rise to a whole new subfield, disability sexuality studies. Transforming the future of (dis/abled) sexualities hinges on the notion that sex and disability are malleable, pliable, and quite often multifarious. Disabled people cannot, and must not, create a “dismodern” world on their own. They must continue to build coalitions, coalitions across disability, across various sexual and racial/ethnic minorities, and with their (often) privileged “nondisabled” allies. Researchers, activists, and artists need to work together to dispel powerful myths about the dominant arenas in which sexuality is performed.
The United States continues to grow in population, particularly among persons of minority. With the statistics in mind, it becomes all the more relevant for counselors to be knowledgeable and prepared to work with the growing populations in relation to their values, culture, family dynamics, and ultimately how they view and treat their disabled members. This chapter represents a synopsis of six different groups; Hispanic or Latino Americans, African Americans, Asian Americans, Middle Eastern Americans, European Americans, and Native Americans. It presents a synopsis of each specific group’s culture, cultural and family perspectives on disability, socioeconomic factors, and religion. Involving the entire family and not just the client can assist counselors to establish a relationship of trust that can be meaningful for the counselor-client relationship. Cultural competence has been known to be an important component in receiving school psychological services for Arab American youth and their families.
- Go to chapter: Giving Parents a Voice: A Qualitative Study of the Challenges Experienced by Parents of Children With Disabilities
Giving Parents a Voice: A Qualitative Study of the Challenges Experienced by Parents of Children With Disabilities
No other single individual or health care provider has more influence on the personal health and wellness of a child with a disability than the parent. To date, however, much research concerned with the well-being of parents of children with disabilities has not captured their experiences from the perspective of the parents themselves. Qualitative methods permit researchers to study selected issues in depth, and they produce a wealth of detailed information that increases understanding of the cases and situations studied. This chapter identifies specific sources of challenges related to raising a child with a disability as expressed by parents themselves. Specifically, it investigates the following research questions: (a) What are the principal stressors and challenges for parents of children with disabilities? and (b) What supports and services do parents identify as being needed to deal with the stress and challenges of their responsibilities?.